Treatments
11/16/09 Stable Scans .....Great news!
We are still struggling with pain and hydrocephalus/pressure issues, but Gray seems to have many more good days than bad.
May of 2009, Gray had another set back. He started having severe hydrocephalus, pressure pain headaches again in March. Although the CT's and MRI's showed no hydrocephalus or shunt failure we decided to have exploratory surgery to try and identify the cause of his pain. His shunt seemed to be working so his Neurosurgeon replaced the catheter in the valve in hopes that this was the problem. His hydrocephalus has never been clear cut, seemingly intermittent, but it does cause serious pain and brain damage. Grayson spent yet another birthday in the hospital, it always seems that the toughest times come around his birthday but he recuperated quickly and his pain seemed to be lessened with the new valve. Over time his shunt has shifted in his brain and is not optimally placed, but it is in a critical location so we cannot remove it. If we cannot maintain his pressure headaches then we will have no other option but to put another shunt in his head to circulate his cerebral spinal fluid.
May 2008 Vinblastine Chemotherapy, failed
June 2007 - April 2008 Carboplatin Chemotherapy, stable for 8 months
March 2007 - June 2007 Carboplatin/Vincristine Chemotherapy, tumor shrinkage
July 2006 - January 2007 Temodar Chemotherapy, failed
Making a Difference
Please join us while we continue to move forward in finding a cure. Grayson is our driving force, telling his story, while trying to stay connected with family and friends. We have found inspiration through organizations both big and small, and we have become part of a much larger community. A place where families and friends come together with love, courage, dedication and hope to make a difference. Many of these families' children have already earned their "Angel Wings", yet they still find the strength to move forward so that we can make a difference for all of our children.
We need your help.
Click the link below to join People Against Childhood Cancer.
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